Resources from the Intellectual and Developmental Disabilities Knowledge Path compiled by the Maternal and Child Health Library at Georgetown University.
Administration on Developmental Disabilities (ADD). Offers program information and links to resources that promote independence, productivity, and integration and inclusion into the community for individuals with developmental disabilities and their families. ADD is part of the Department of Health and Human Services (DHHS) [add link: http://www.hhs.gov/].
American Association on Intellectual and Developmental Disabilities (AAIDD). Offers conference, legislative, and membership information, fact sheets, and position statements for professionals who support people with intellectual and developmental disabilities.
ARC of the United States. Offers fact sheets and guides to supports and services for families raising children with intellectual and developmental disabilities. Also offers contact information for local chapters. Some resources are only available after registering online with ARC.
Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence. Provides program information and resources about fetal alcohol spectrum disorders, which includes fetal alcohol syndrome, fetal alcohol effects, alcohol-related neurodevelopmental disorder (ARND), and alcohol-related birth defects. Includes materials to raise awareness about FASD. The center is part of the Substance Abuse and Mental Health Services Administration (SAMHSA). [add link: http://www.samhsa.gov/]
National Down Syndrome Society (NDSS). Offers research, policy, and legislative information to support individuals with Down syndrome and other intellectual disabilities and their families. Resources address health, development, and education issues and are available in English and Spanish.
National Fragile X Foundation (NFXF). Offers research and conference information and resources for professionals and families about the diagnosis and treatment of Fragile X syndrome. Includes contact information for parent support groups. Some resources are available in Spanish.
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